Newborn screening as a public health program -- Uses of residual newborn screening samples in research -- Concerns about the use of residual newborn screening samples -- Review and consent in the use of residual newborn screening samples -- Parental and public education -- Workshop overview and wrap-up.
Summary:
"Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research."
This resource is supported by the Institute of Museum and Library Services under the provisions of the Library Services and Technology Act as administered by State Library of Iowa.