Racial/ethnic communities and newborn screening policies / Toby Citrin and Stephen M. Modell -- Cost-effectiveness as a criterion for newborn screening policy decisions / Scott D. Grosse -- An advocate's perspective on newborn screening policy / Jannine De Mars Cody -- Newborn screening for conditions that do not meet the Wilson and Jungner criteria : the case of Duchenne muscular dystrophy / Lainie Friedman Ross -- Lessons to be learned from the move toward expanded newborn screening / Ellen Wright Clayton -- State newborn screening advisory committees : how programs introduce public participation into decision making / Bruce Jennings and Andrea Bonnicksen -- Racial/ethnic communities and newborn screening policies / Toby Citrin and Stephen M. Modell -- What can we do to shape the future of newborn screening? : conclusions and recommendations / Mary Ann Baily and Thomas H. Murray. What is the role for evidence-based decision making in expanded newborn screening? / Virginia A. Moyer ... [et al.] -- Research for newborn screening : developing a national framework / Jeffrey R. Botkin -- Ethical and policy issues involving research with newborn screening blood samples / Karen J. Maschke -- Parental permission for research in newborn screening / Jeffrey R. Botkin -- Population-based research within a public health service : two models for compliance with the common rule in the Massachusetts newborn screening program / Anne Marie Comeau and Donna E. Levin -- Ethical and policy implications of conducting carrier testing and newborn screening for the same condition / Benjamin S. Wilfond -- What can we do to shape the future of newborn screening? : conclusions and recommendations / Mary Ann Baily and Thomas H. Murray.
This resource is supported by the Institute of Museum and Library Services under the provisions of the Library Services and Technology Act as administered by State Library of Iowa.