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04322aam a2200385Ii 4500 001 D58E85508EDA11E79D30CEF996128E48 003 SILO 005 20170901010017 008 170318s2017 njuh 001 0deng d 020 $a 1483592723 020 $a 9781483592725 035 $a (OCoLC)978289882 040 $a BTCTA $b eng $e rda $c BTCTA $d BDX $d IUO $d JAI $d DAD $d OCLCF $d CPL $d JIU $d SILO 043 $a n-us--- 100 1 $a Kramer, Laura Shapiro, $e author. 245 10 $a Uncommon voyage : $b parenting children with special needs : a guidebook / $c by Laura Shapiro Kramer. 246 30 $a Parenting children with special needs : $b a guidebook 250 $a First edition. 264 1 $a [Pennsauken, New Jersey?] : $b BookBaby, $c [2017] 300 $a 166 pages ; $c 23 cm 520 $a "Kramer, author of a 1997 book (also titled Uncommon Voyage) that recounts her struggles to find alternative therapies to treat her son's cerebral palsy, returns with a guidebook to help parents cope with the burdens and joys of raising a special-needs child. As she explains to new readers, after her son, Seth, was diagnosed with cerebral palsy, she found herself dissatisfied with what conventional medicine was offering and thus sought out new treatments. Throughout this new book, Kramer's experience and empathy shine through. Parents are encouraged to recognize that they are experts on their own children and that they should feel confident in their own knowledge. There is ample guidance regarding finding the help your child needs as well as an extensive resource section. Kramer also offers practical advice to parents on how to prevent their children's needs from consuming them. The concern and respect Kramer shows for the children of her readers and the advice she gives to parents about their children are informed by her son's willingness to speak for himself in a world uncomfortable with disabilities. This is a well-thought-out guide for parents that provides a flexible and compassionate approach to learning how best to help your child and yourself."--BookLife, April 2017. 504 $a Includes bibliographical references (pages 155-162) and index. 505 0 $a Ship's manifest -- A brief narrative of my personal journey -- Logging : using a journal to track and guide your journey -- Home port : becoming aware of your personal style -- Semaphore : shaping and sending the message of your child's situation -- Mapping : defining yourself as the parent of a special-needs -- Raising anchor : approaching research and advocacy on behalf of your child -- Ship's officers : embracing the joys and challenges in an intimate relationship as parents of a special needs child -- Traveling companions : determining the individuals and therapies to take on board -- Course correction : transforming self on both personal and professional levels -- All hands on deck : latching on to what you can do on your own right now -- Shipmates : meeting the challenges for siblings and special needs children -- Naval academy : accessing education and appropriate services for your child -- Anchors and wings : enlarging your child's world to encourage freedom and build self-esteem -- Storms at sea : confronting universal challenges : financial considerations, transitions of caregivers, therapists, and doctors, and the place of faith -- Restoring : drawing on life experiences for the tools to restore yourself -- Lifesavers : ten tried and true moorings to latch on to -- Afterword: "The only failure is not trying" -- Appendix: What I learned off the main course -- Appendix: A-Z : detailed descriptions of therapies and methodologies referenced in the book including links for further learning. 650 0 $a Parents of children with disabilities. 650 0 $a Parents of children with disabilities $z United States $v Biography. 600 10 $a Kramer, Laura Shapiro $x Family. 600 10 $a Kramer, Seth $c (Cerebral palsy patient) $x Health. 650 0 $a Children with disabilities $x Care. 650 0 $a Children with disabilities $x Care $v Case studies. 650 0 $a Cerebral palsied children $z United States $v Biography. 650 0 $a Cerebral palsy $v Case studies. 941 $a 1 952 $l GDPF771 $d 20170901010129.0 956 $a http://locator.silo.lib.ia.us/search.cgi?index_0=id&term_0=D58E85508EDA11E79D30CEF996128E48 994 $a C0 $b JIUInitiate Another SILO Locator Search