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04299aam a2200625 i 4500 001 C18C79BA90F111EA86A69E4897128E48 003 SILO 005 20200508010100 008 160425t20172017mdu b 001 0 eng 010 $a 2016019645 020 $a 1421421844 020 $a 9781421421841 035 $a (OCoLC)948243812 040 $a DNLM/DLC $b eng $e rda $c DLC $d NLM $d YDX $d BDX $d OCLCF $d CHVBK $d IUL $d AQ3 $d OCLCQ $d OCLCA $d UKMGB $d OCLCO $d OCLCA $d SILO 042 $a pcc 043 $a n-us--- 050 00 $a R726.8 $b .A23352 2017 060 00 $a 2017 B-557 060 10 $a WB 310 082 00 $a 616.02/9 $2 23 100 1 $a Abel, Emily K., $e author. 245 10 $a Living in death's shadow : $b family experiences of terminal care and irreplaceable loss / $c Emily K. Abel. 264 1 $a Baltimore : $b Johns Hopkins University Press, $c 2017. 300 $a 172 pages ; $c 24 cm 504 $a Includes bibliographical references and index. 505 0 $a "The human touch" : defining the good doctor -- "Hope became a companion in our home" : enrolling in clinical trials -- When medicine fails -- Caring by kin : preventing stress and preserving dignity -- The shadow workforce in hospitals and nursing homes -- The evolution of hospice care : transforming the role of kin. 520 $a What is it like to live with--and love--someone whose death, while delayed, is nevertheless foretold? In Living in Death's Shadow, Emily K. Abel, an expert on the history of death and dying, examines memoirs written between 1965 and 2014 by family members of people who died from chronic disease. In earlier eras, death generally occurred quickly from acute illnesses, but as chronic disease became the major cause of mortality, many people continued to live with terminal diagnoses for months and even years. Illuminating the excruciatingly painful experience of coping with a family member's extended fatal illness, Abel analyzes the political, personal, cultural, and medical dimensions of these struggles. The book focuses on three significant developments that transformed the experiences of those dying and their intimates: the passage of Medicare and Medicaid, the growing use of high-tech treatments at the end of life, and the rise of a movement to humanize the care of dying people. It questions the exalted value placed on acceptance of mortality as well as the notion that it is always better to die at home than in an institution. Ultimately, Living in Death's Shadow emphasizes the need to shift attention from the drama of death to the entire course of a serious chronic disease. The chapters follow a common narrative of life-threatening disease: learning the diagnosis; deciding whether to enroll in a clinical trial; acknowledging or struggling against the limits of medicine; receiving care at home and in a hospital or nursing home; and obtaining palliative and hospice care. Living in Death's Shadow is essential reading for everyone seeking to understand what it means to live with someone suffering from a chronic, fatal condition, including cancer, AIDS, Alzheimer's, and heart disease. 600 17 $a Trauer, ... $2 gnd 610 27 $a UmschulungswerkstaÌtten fuÌr Siedler und Auswanderer $g Bitterfeld $2 gnd 650 0 $a Terminal care. 650 0 $a Grief. 650 0 $a Death $x Psychological aspects. 650 0 $a Chronic diseases $x Psychological aspects. 650 0 $a Caregivers $x Psychology. 650 7 $a Caregivers $x Psychology. $2 fast $0 (OCoLC)fst00847349 650 7 $a Chronic diseases $x Psychological aspects. $2 fast $0 (OCoLC)fst00860087 650 7 $a Death $x Psychological aspects. $2 fast $0 (OCoLC)fst00888643 650 7 $a Grief. $2 fast $0 (OCoLC)fst00947883 650 7 $a Terminal care. $2 fast $0 (OCoLC)fst01147835 650 7 $a Tod $2 gnd 650 7 $a Sterben $2 gnd 650 7 $a Chronische Krankheit $2 gnd 650 7 $a Krankenpflege $2 gnd 650 12 $a Terminal Care. 650 22 $a Attitude to Death. 650 22 $a Caregivers $x psychology. 650 22 $a Chronic Disease $x psychology. 650 22 $a Family Relations. 650 22 $a Grief. 651 2 $a United States. 655 2 $a Personal Narrative. 941 $a 1 952 $l CEAX572 $d 20200508022251.0 956 $a http://locator.silo.lib.ia.us/search.cgi?index_0=id&term_0=C18C79BA90F111EA86A69E4897128E48 994 $a 92 $b UINInitiate Another SILO Locator Search