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02838aam a22004454i 4500 001 CF3C0DDCB26311E8BB1AE23C97128E48 003 SILO 005 20180907010357 008 180609t20182018nyuaf 000 0aeng c 010 $a 2018011395 020 $a 1250135281 020 $a 9781250135285 035 $a (OCoLC)1016939845 040 $a LBSOR/DLC $b eng $e rda $c DLC $d OCLCO $d ON8 $d IOU $d SILO 042 $a pcc 050 00 $a RJ456.C9 $b M87 2018 082 00 $a 618.923/72 $2 23 100 1 $a Murnaghan, Janet, $e author. 245 10 $a Saving Sarah / $c Janet Murnaghan. 246 30 $a Saving Sarah : $b one mother's battle against the healthcare system to save her sister's life 250 $a First edition. 264 1 $a New York : $b St. Martin's Press, $c 2018. 300 $a 246 pages, 16 unnumbered pages of plates : $b color illustrations ; $c 25 cm 520 $a "When her daughter desperately needed a lung transplant to survive, Janet Murnaghan rallied against the outdated restrictions in healthcare that would limit her daughter's options. Sarah had been dying of cystic fibrosis since the day she was born. The disease quickly ravaged her lungs and little body bit-by-bit. Fragile and frail, she had only weeks to live, when her mom realized the reality of Sarah's situation: transplant laws, restricting access to lungs based on arbitrary age restrictions, meant Sarah's options were limited. The injustice of her daughter's fate spurred Janet to start a public battle against outdated health care regulations and a battle to save Sarah's life. Janet transformed her pain and desperation into a voice for Sarah and other kids using social media as her megaphone with friends and family as Sarah's warriors. How does a family navigate catastrophic illness and life in a hospital, while still maintaining a sense of normalcy? Saving Sarah is a story of hope and courage, and a mother's determination to never give up. It's also the story of how a family--Janet and her husband Fran have three other children, one adopted from Ghana--reacts and adjusts when one of its members is in ongoing crisis"-- $c Provided by publisher. 600 10 $a Murnaghan, Janet. 600 10 $a Murnaghan, Sarah. 600 10 $a Murnaghan, Janet $x Family. 650 0 $a Cystic fibrosis in children. 650 0 $a Parents of terminally ill children $v Biography. 650 0 $a Terminally ill children $v Biography. 650 0 $a Transplantation of organs, tissues, etc. in children. 650 0 $a Families of the terminally ill. 655 7 $a Autobiographies. $2 lcgft 941 $a 4 952 $l YEPF572 $d 20190814052338.0 952 $l EFPB605 $d 20190128151008.0 952 $l GDPF771 $d 20181002012705.0 952 $l OCPA943 $d 20180911010508.0 956 $a http://locator.silo.lib.ia.us/search.cgi?index_0=id&term_0=CF3C0DDCB26311E8BB1AE23C97128E48 994 $a C0 $b IOUInitiate Another SILO Locator Search