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04228cam a2200637|| 4500 001 DD6285D8FBD011DEB3E93EDF5F36B428 003 SILO 005 20100619010108 008 080730|2009 ||| 000 0 ||| d 010 $a 2008033831 020 $a 9780801891519 (hardcover : alk. paper) 020 $a 0801891515 035 $a (OCoLC)237195221 040 $a DNLM/DLC $c DLC $d SILO $d BTCTA $d YDXCP $d C#P $d BWX $d IG# $d CS1 $d CDX $d UBY $d NLGGC $d UII $d SILO 042 $a pcc 050 00 $a RJ255.6.D55 $b E84 2009 060 00 $a 2009 G-247 060 10 $a WS 200 $b E84 2009 082 00 $a 618.92/0042 $2 22 084 $a 44.02 $2 bcl 245 0 $a Ethics and newborn genetic screening : $b new technologies, new challenges / $c edited by Mary Ann Baily and Thomas H. Murray. 260 $a Baltimore : $b Johns Hopkins University Press, $c 2009. 300 $a xvi, 354 p. ; $c 24 cm. 504 $a Includes bibliographical references and index. 505 00 $t Racial/ethnic communities and newborn screening policies / $r Toby Citrin and Stephen M. Modell -- $t Cost-effectiveness as a criterion for newborn screening policy decisions / $r Scott D. Grosse -- $t An advocate's perspective on newborn screening policy / $r Jannine De Mars Cody -- $t Newborn screening for conditions that do not meet the Wilson and Jungner criteria : the case of Duchenne muscular dystrophy / $r Lainie Friedman Ross -- $t Lessons to be learned from the move toward expanded newborn screening / $r Ellen Wright Clayton -- $t State newborn screening advisory committees : how programs introduce public participation into decision making / $r Bruce Jennings and Andrea Bonnicksen -- $t Racial/ethnic communities and newborn screening policies / $r Toby Citrin and Stephen M. Modell -- 505 00 $t What can we do to shape the future of newborn screening? : conclusions and recommendations / $r Mary Ann Baily and Thomas H. Murray. $t What is the role for evidence-based decision making in expanded newborn screening? / $r Virginia A. Moyer ... [et al.] -- $t Research for newborn screening : developing a national framework / $r Jeffrey R. Botkin -- $t Ethical and policy issues involving research with newborn screening blood samples / $r Karen J. Maschke -- $t Parental permission for research in newborn screening / $r Jeffrey R. Botkin -- $t Population-based research within a public health service : two models for compliance with the common rule in the Massachusetts newborn screening program / $r Anne Marie Comeau and Donna E. Levin -- $t Ethical and policy implications of conducting carrier testing and newborn screening for the same condition / $r Benjamin S. Wilfond -- $t What can we do to shape the future of newborn screening? : conclusions and recommendations / $r Mary Ann Baily and Thomas H. Murray. 650 0 $a Genetic disorders $x Moral and ethical aspects. $x Moral and ethical aspects. 650 0 $a Newborn infants $x Moral and ethical aspects. $x Diagnosis $x Moral and ethical aspects. 650 0 $a Genetic screening $x Moral and ethical aspects. 650 12 $a Genetic Diseases, Inborn $x diagnosis. 650 12 $a Neonatal Screening $x ethics. 650 22 $a Genetic Testing $x ethics. 650 22 $a Health Policy. 650 22 $a Infant, Newborn. 650 17 $a Screening. $2 gtt 650 17 $a Pasgeborenen. $2 gtt 650 17 $a Aangeboren afwijkingen. $2 gtt 650 17 $a Diagnose. $2 gtt 650 17 $a Dilemma's. $2 gtt 650 17 $a Ethische aspecten $2 gtt 650 17 $a Bio-ethiek. $2 gtt 700 1 $a Baily, Mary Ann. 700 1 $a Murray, Thomas H., $d 1946- 856 41 $3 Table of contents only $u http://www.loc.gov/catdir/toc/ecip0824/2008033831.html 856 42 $3 Contributor biographical information $u http://www.loc.gov/catdir/enhancements/fy0902/2008033831-b.html 856 42 $3 Publisher description $u http://www.loc.gov/catdir/enhancements/fy0902/2008033831-d.html 941 $a 7 952 $l PLAX964 $d 20230718085202.0 952 $l USUX851 $d 20171003034540.0 952 $l HWAX074 $d 20140415020907.0 952 $l OIAX792 $d 20110119010421.0 952 $l PHAX277 $d 20100405124000.0 952 $l PTAX572 $d 20100301073843.0 952 $l UTAX115 $d 20100405095938.0 956 $a http://locator.silo.lib.ia.us/search.cgi?index_0=id&term_0=DD6285D8FBD011DEB3E93EDF5F36B428 994 $a 02 $b UIIInitiate Another SILO Locator Search