Includes bibliographical references (p. 253-311) and index.
Contents:
The dilemma of human research -- The nature of research -- A case study: the difference between being a patient and being a research subject -- How the law protects patients who get nonstandard care -- The weakened legal protections given to research subjects -- How bad for the subjects can a study be? -- What informed consent requires -- The anatomy of a consent form -- The good, the bad, and the ugly research study: from consent to choice -- The hidden alternative -- Incompetent dults -- Emergency research -- Children in research: the basic rules -- Can children be enrolled in studies that are bad for them? -- Research and reproduction -- Should research subjects be paid? -- Compensating researchers: dealing with conflicts of interest -- Where do we go from here? The paradox of pediatric cancer research.
This resource is supported by the Institute of Museum and Library Services under the provisions of the Library Services and Technology Act as administered by State Library of Iowa.