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04150nam a2200421 a 4500 001 2B4C3B242B0F11DE8F715E08A8D7520A 005 200904170018.0 008 061117s2006 ne b 000 0 eng c 010 $a 2007271360 020 $a 9004155597 (alk. paper) 020 $a 9789004155596 (alk. paper) 035 $a (OCoLC)82673721 040 $a YLS $c YLS $d SILO $d DLC $d YDXCP $d BAKER $d BTCTA $d CKX $d LUI $d SILO 050 00 $a K3611.G46 $b G484 2007 060 00 $a 2007 C-815 060 10 $a QU 58.5 $b G33527 2007 245 0 $a Genomics and public health : $b legal and socio-ethical perspectives / $c edited by Bartha Maria Knoppers. 260 $a Boston : $a Boston : $b Martinus Nijhoff, $c c2007. 300 $a xi, 329 p. : $b ill. ; $c 25 cm. 504 $a Includes bibliographical references. 505 0 $a pt. I. Population screening : issues, realities and possibilities. Introduction : expansion of screening / J. Gerard Loeber ; Expansion of newborn screening : current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility : what's the harm? / Nikki Kerruish ; Newborn screening expansion : Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening : a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction : newborn screening : storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research : revised biobank regulations / Bent Norgaard-Pedersen, David M. Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday -- pt. II. Balancing interests in public health genomics. Introduction : of genomics and public health : building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics - the public health perspective on genome-based knowledge and technologies / Angela Brand -- pt. III. Genomics and public health : current approaches and future perspectives. Introduction : the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice : international policy implications / Stuart Hogarth ; GRaPH Int : an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue : an analysis of two projects / Hubert Doucet ... [et al.] ; Meeting of minds : a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics : engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin. 650 0 $a Genetic screening $x Law and legislation. 650 0 $a Genomics 650 0 $a Genomics $x Moral and ethical aspects. 650 0 $a Public Health. 650 12 $a Genomics $x ethics. 650 22 $a Human rights. 650 22 $a Mass Screening 650 22 $a Public Health $x ethics. 700 1 $a Knoppers, Bartha Maria. 856 41 $3 Table of contents only $u http://www.loc.gov/catdir/toc/fy0708/2007271360.html 939 $a 5788064 941 $a 3 952 $l OVUX522 $d 20171230024124.0 952 $l USUX851 $d 20160823083403.0 956 $a http://locator.silo.lib.ia.us/search.cgi?index_0=id&term_0=2B4C3B242B0F11DE8F715E08A8D7520A 994 $a 02 $b LUI 952 $l N5UX522 $d 20090701080000.0Initiate Another SILO Locator Search