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Title:

The governance of genetic information : who decides? / edited by Heather Widdows and Caroline Mullen.

Publisher:

Cambridge University Press,

Copyright Date:

2009

Description:

xi, 235 p. ; 24 cm.

Subject:

Genetic screening--Moral and ethical aspects.
Genetic screening--Government policy.
Privacy, Right of.
Medical records--Access control.
Genetic Privacy--ethics.
Decision Making--ethics.
Genetic Privacy--legislation & jurisprudence.
Public Policy.

Other Authors:

Widdows, Heather, 1972-
Mullen, Caroline.

Notes:

Includes bibliographical references and index.

Contents:

Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Ruth Chadwick, Heather Strange. Decisions, consent and expectations of the individual / Caroline Mullen -- Ethical frameworks of governance. Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Redesigning governance. Involving publics in biobank governance : moving beyond existing approaches / Kathryn G. Hunter, Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick, Heather Strange.

Series:

Cambridge law, medicine, and ethics

ISBN:

0521509912 (hardback : alk. paper)
9780521509916 (hardback : alk. paper)

OCLC:

(OCoLC)318871873

LCCN:

2009018067

Locations:

UNUX074 -- University of Northern Iowa - Rod Library (Cedar Falls)

N5UX522 -- University of Iowa Law Library (Iowa City)

OVUX522 -- University of Iowa Libraries (Iowa City)