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02757cam a22004694a 4500 001 644A7D04FBD011DEB3E93EDF5F36B428 003 SILO 005 20150520012456 008 090501s2009 enk b 001 0 eng 010 $a 2009018067 020 $a 0521509912 (hardback : alk. paper) 020 $a 9780521509916 (hardback : alk. paper) 035 $a (OCoLC)318871873 040 $a DNLM/DLC $c DLC $d SILO $d YDXCP $d NLM $d UKM $d BWKUK $d BWK $d UBY $d NLA $d IOJ $d SILO 042 $a pcc 050 00 $a RB155.65 $b .G68 2009 060 00 $a 2009 J-910 060 10 $a QZ 21 $b G721 2009 082 00 $a 362.196/04207 $2 22 245 0 $a The governance of genetic information : $b who decides? / $c edited by Heather Widdows and Caroline Mullen. 260 $a New York : $b Cambridge University Press, $c 2009. 300 $a xi, 235 p. ; $c 24 cm. 490 1 $a Cambridge law, medicine, and ethics 504 $a Includes bibliographical references and index. 505 00 $t Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / $t Medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- $t Me, myself, I : against narcissism in the governance of genetic information / $r Ruth Chadwick, Heather Strange. $t Decisions, consent and expectations of the individual / $r Caroline Mullen -- $t Ethical frameworks of governance. $t Constructing communal models of governance : collectives of individuals or distinct ethical loci? / $r Heather Widdows -- $t Rights, responsibility and stewardship : beyond consent / $r Roger Brownsword -- $t Who decides what? : relational ethics, genetics and well-being / $r Sarah Wilson -- $t Redesigning governance. $t Involving publics in biobank governance : moving beyond existing approaches / $r Kathryn G. Hunter, Graeme T. Laurie -- $t Genetic information and public opinion / $r Andrew Edgar -- $t Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / $r Ruth Chadwick, Heather Strange. 650 0 $a Genetic screening $x Moral and ethical aspects. 650 0 $a Genetic screening $x Government policy. 650 0 $a Privacy, Right of. 650 0 $a Medical records $x Access control. 650 12 $a Genetic Privacy $x ethics. 650 22 $a Decision Making $x ethics. 650 22 $a Genetic Privacy $x legislation & jurisprudence. 650 22 $a Public Policy. 700 1 $a Widdows, Heather, $d 1972- 700 1 $a Mullen, Caroline. 830 0 $a Cambridge law, medicine, and ethics. 941 $a 3 952 $l OVUX522 $d 20180104042456.0 952 $l N5UX522 $d 20100120073657.0 952 $l UNUX074 $d 20100405102732.0 956 $a http://locator.silo.lib.ia.us/search.cgi?index_0=id&term_0=644A7D04FBD011DEB3E93EDF5F36B428 994 $a 02 $b IOJInitiate Another SILO Locator Search