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Title:

Achieving justice in genomic translation : rethinking the pathway to benefit / edited by Wylie Burke ... [et al.].

Publisher:

Oxford University Press,

Copyright Date:

c2011

Description:

x, 212 p. : ill. ; 25 cm.

Subject:

Human genetics--Moral and ethical aspects.--Moral and ethical aspects.
Genomics--Moral and ethical aspects.--Moral and ethical aspects.
Genetic screening--Moral and ethical aspects.
Genetic Research--ethics.
Bioethical Issues.
Genetic Predisposition to Disease.
Genetic Testing--ethics.
Translational Medical Research--ethics.

Other Authors:

Burke, Wylie.

Notes:

Includes bibliographical references and index.

Contents:

Making good on the promise of genetics : justice in translational science / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.

ISBN:

0195390385 (hardback : alk. paper)
9780195390384 (hardback : alk. paper)

OCLC:

(OCoLC)690088075

LCCN:

2011011621

Locations:

USUX851 -- Iowa State University - Parks Library (Ames)