Who owns DNA test results? Testing companies claim consumers own their genetic information / Leah Larkin ; Buyer beware! AncestryDNA can identify you and your genetic relatives / Joel Winston ; A DNA data breach could mean rejections of insurance, credit, and employment--or worse / Angela Chen ; Testing companies do not share your data without your consent / Rob Verger -- Should testing companies reserve some rights to DNA data? When testing companies retain rights they can sell consumer data / Genevieve Rajewski ; There's a buck to be made by testing DNA for reasons other than ancestry / Emily Mullin ; The United States needs to regulate direct-to-consumer DNA testing / Sarah F. Sunderman ; Privacy guidelines do not guarantee consumer privacy rights / Tiffany Li and Mason Marks ; Regulation poses several challenges / Jane Tiller and Paul Lacaze -- Should DNA testing reveal the consumer's identity? Online genetic testing has a dark side / Catriona May ; Finding the Golden State killer raised privacy concerns / Rebecca Robbins ; There is no such thing as anonymous data / Olivia Solon ; It's impossible to know the consequences of uploading genetic information, now or in the future / Elizabeth Minkel ; New capabilities may discourage people from allowing the release of their DNA for scientific research / Glyn Moody -- Should testing companies share genetic data with research partners? Cataloging citizens' DNA would help solve crimes but at a great cost to privacy and safety / Glyn Moody ; Openly sharing genetic data creates active participation in scientific research / Bastian Greshake ; A family's right to genetic privacy does not trump an individual's right to publish their genome / Michael Eisen ; Researchers can identify anonymous genetic information / Susan Young Rojahn ; Direct-to-consumer DNA testing kits use a new business model for testing company advantage / Sheldon Krimsky and David Cay Johnston ; Integrate direct-to-consumer testing into genetic medicine / Nazneen Rahman.
Summary:
Home DNA testing companies, such as 23 and Me and AncestryDNA, are at peak popularity, fulfilling our desires to know where we come from and what our future might look like. But questions have arisen about who owns test results and whether testing companies have the right to sell customers' data to pharmaceutical companies and other outlets. Yet home DNA tests have been credited with catching criminals, such as the Golden State Killer. Containing viewpoints from diverse voices in the field, this volume examines the controversies surrounding home DNA tests.
This resource is supported by the Institute of Museum and Library Services under the provisions of the Library Services and Technology Act as administered by State Library of Iowa.