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02865aam a2200505 i 4500 001 4F949A0CCD6211EE9507C16149ECA4DB 003 SILO 005 20240217010049 008 230309t20232023enk b 001 0 eng c 020 $a 1003312519 020 $a 9781003312512 020 $a 1032320435 020 $a 9781032320434 020 $a 1032320443 020 $a 9781032320441 035 $a (OCoLC)1373396302 040 $a UKMGB $b eng $e rda $c UKMGB $d YDX $d BDX $d OCLCF $d YDX $d OCLCO $d GUL $d LHL $d SILO 042 $a pcc 050 4 $a QH447 $b .B73 2023 100 1 $a Brassington, Iain, $e author. $1 https://isni.org/isni/000000006158600X 245 14 $a The private life of the genome : $b genetic information and the right to privacy / $c Iain Brassington. 264 1 $a London : $b Routledge, $c 2023. 300 $a [vi], 212 pages ; $c 23 cm 504 $a Includes bibliographical references and index. 505 0 $a Presumptions and foundations -- A sceptic's tour of genetic privacy rights -- Rebuilding genetic privacy rights. 520 $a "This innovative and engaging book argues that because our genetic information is directly linked to the genetic information of others, it is impossible to assert a ‘right to privacy’ in the same way that we can in other areas of life. This position throws up questions around access to sensitive data .It suggests that we may have to abandon certain intuitions about who may access our genetic information; and it raises concerns about discrimination against people with certain genetic characteristics. But the author asserts that regulating access to genetic information requires a more nuanced perspective that does not rely on the familiar language of rights. The book proposes new ways in which we may think about who has access to what genetic information, and on what basis they do so.Conceptually challenging, the book will prove engaging reading for scholars and students interested in the area of bioethics and medical law, as well as policy makers working with these pressing issues."--from the publisher. 650 0 $a Genomics. 650 0 $a Human gene mapping. 650 0 $a Human gene mapping $x Moral and ethical aspects. 650 0 $a Data privacy. 650 0 $a Medical ethics. 650 6 $a Genomique. 650 6 $a Cartes chromosomiques humaines. 650 6 $a Cartes chromosomiques humaines $x Aspect moral. 650 6 $a Confidentialite des donnees. 650 6 $a Ethique medicale. 650 7 $a Data privacy $2 fast 650 7 $a Genomics $2 fast 650 7 $a Human gene mapping $2 fast 650 7 $a Human gene mapping $x Moral and ethical aspects $2 fast 650 7 $a Medical ethics $2 fast 776 08 $i ebook version : $z 9781000863796 941 $a 1 952 $l OVUX522 $d 20240217010928.0 956 $a http://locator.silo.lib.ia.us/search.cgi?index_0=id&term_0=4F949A0CCD6211EE9507C16149ECA4DBInitiate Another SILO Locator Search