95 records matched your query       

03054aam a22003494a 4500
001 907A9030C01D11E1A82FE4816AFF544E
003 SILO
005 20120627010123
008 110316s2011    enka     b    001 0 eng  
010    $a 2011011621
020    $a 0195390385 (hardback : alk. paper)
020    $a 9780195390384 (hardback : alk. paper)
035    $a (OCoLC)690088075
040    $a DNLM/DLC $b eng $c DLC $d SILO $d NLM $d BTCTA $d YDXCP $d BWX $d CDX $d SHH $d CHS $d IG# $d DEBBG $d BDX $d SILO
042    $a pcc
245 0  $a Achieving justice in genomic translation : $b rethinking the pathway to benefit / $c edited by Wylie Burke ... [et al.].
260    $a Oxford ; $b Oxford University Press, $c c2011.
300    $a x, 212 p. : $b ill. ; $c 25 cm.
504    $a Includes bibliographical references and index.
505 0  $a Making good on the promise of genetics : justice in translational science / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.
650  0 $a Human genetics $x Moral and ethical aspects. $x Moral and ethical aspects.
650  0 $a Genomics $x Moral and ethical aspects. $x Moral and ethical aspects.
650  0 $a Genetic screening $x Moral and ethical aspects.
650 12 $a Genetic Research $x ethics.
650 22 $a Bioethical Issues.
650 22 $a Genetic Predisposition to Disease.
650 22 $a Genetic Testing $x ethics.
650 22 $a Translational Medical Research $x ethics.
700 1  $a Burke, Wylie.
941    $a 1
952    $l USUX851 $d 20180703070431.0
956    $a http://locator.silo.lib.ia.us/search.cgi?index_0=id&term_0=907A9030C01D11E1A82FE4816AFF544E