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03049aam a2200409 i 4500 001 732D34CA51B111E3971B51B5DAD10320 003 SILO 005 20131120010027 008 120515t20132013iluab b 001 0 eng c 010 $a 2012019820 020 $a 0226924971 (cloth : alkaline paper) 020 $a 9780226924977 (cloth : alkaline paper) 035 $a (OCoLC)783150279 040 $a ICU/DLC $b eng $e rda $c CGU $d DLC $d NLM $d STF $d BTCTA $d BDX $d CDX $d YDXCP $d CUX $d OCLCO $d OCLCQ $d FMU $d OCLCO $d UKMGB $d NSB $d SILO 042 $a pcc 043 $a n-us--- 050 00 $a RJ255.5 $b .T555 2013 060 00 $a 2013 A-243 060 10 $a QZ 52 082 00 $a 618.92/01 $2 23 100 1 $a Timmermans, Stefan, $d 1968- 245 10 $a Saving babies? : $b the consequences of newborn genetic screening / $c Stefan Timmermans and Mara Buchbinder. 264 1 $a Chicago ; $b The University of Chicago Press, $c 2013, ©2013. 300 $a xii, 307 pages : $b illustrations, map ; $c 24 cm. 490 1 $a Fieldwork encounters and discoveries. 505 0 $a The consequences of newborn screening -- The expansion of newborn screening -- Patients-in-waiting -- Shifting disease ontologies -- Is my baby normal? -- The limits of prevention -- Does expanded newborn screening save lives? -- The future of expanded newborn screening. 504 $a Includes bibliographical references (pages 265-293) and index. 520 $a It has been close to six decades since Watson and Crick discovered the structure of DNA and more than ten years since the human genome was decoded. Today, through the collection and analysis of a small blood sample, every baby born in the United States is screened for more than fifty genetic disorders. Though the early-detection of these abnormalities can potentially save lives, the test also has a high percentage of false positives, inaccurate results that can take a brutal emotional toll on parents before they are corrected. Now some doctors are questioning whether the benefits of these screenings outweigh the stress and pain they sometimes produce. In this book the authors evaluate the consequences and benefits of state-mandated newborn screening, and the larger policy questions they raise about the inherent inequalities in American medical care that limit the effectiveness of this potentially lifesaving technology. Drawing on observations and interviews with families, doctors, and policy actors, the authors offer this ethnographic study of how parents and geneticists resolve the many uncertainties in screening newborns. 650 0 $a Newborn infants $x Social aspects $x Social aspects $z United States. 650 0 $a Newborn infants $x Social aspects. $x Diagnosis $x Social aspects. 650 0 $a Genetic screening $x Social aspects $z United States. 650 0 $a Medical screening $x Social aspects $z United States. 700 1 $a Buchbinder, Mara. 830 0 $a Fieldwork encounters and discoveries. 941 $a 1 952 $l UNUX074 $d 20131120010306.0 956 $a http://locator.silo.lib.ia.us/search.cgi?index_0=id&term_0=732D34CA51B111E3971B51B5DAD10320Initiate Another SILO Locator Search