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04039aam a2200445 i 4500 001 D9CF2FB06B5511E69AFE1DDBDAD10320 003 SILO 005 20160826010517 008 140529s2014 enk b 001 0 eng 010 $a 2014020711 020 $a 1107076072 (hardback) 020 $a 9781107076075 (hardback) 020 $a 110742979X (paperback) 020 $a 9781107429796 (paperback) 035 $a (OCoLC)880831272 040 $a DLC $b eng $e rda $c DLC $d YDX $d UKMGB $d YDXCP $d OCLCF $d CDX $d VET $d RCJ $d OCLCO $d IWA $d SILO 042 $a pcc 050 00 $a RB155.6 R53 2014 245 04 $a The right to know and the right not to know : $b genetic privacy and responsibility / $c edited by Ruth Chadwick, Mairi Levitt and Darren Shickle. 250 $a Second edition. 264 1 $a Cambridge, United Kingdom : $b Cambridge University Press, $c 2014. 300 $a xiii, 216 pages ; $c 23 cm. 490 1 $a Cambridge bioethics and law 500 $a First published: Aldershot ; Brookfield, VT : Avebury, 1997. 504 $a Includes bibliographical references and index. 505 00 $g Part III. Emerging Issues -- $r Michiel Korthals. $g Part I. Philosophical and Legal Issues -- $t The food we eat : the right to be informed and the duty to inform / $r Ruth Chadwick, Mairi Levitt and Darren Shickle -- $t Autonomy and a right not to know / $r J©ırgen Husted -- $t Privacy and the right not to know : a plea for conceptual clarity / $r Graeme Laurie -- $g art II. Issues in Genetics -- $t Biobanks and feedback / $r Kadri Simm -- $t Suspects, victims and others : producing and sharing forensic genetic knowledge / $r Robin Williams and Matthias Weinroth -- $t Empowered by choice? / $r Mairi Levitt -- $t DIY genetics : the right to know your own genome / $r Barbara Prainsack -- $t Genomics, inconvenient truths and accountability / $r Jeantine Lunshof and Ruth Chadwick -- $g Part III. Emerging Issues -- $t The right to know and the right not to know in the era of neoliberal biopolitics and bioeconomy / $r Henk Ten Have -- $t The parental love argument against 'designing' babies : the harm in knowing that one has been selected or enhanced / $r Anca Gheaus -- $t The press and the public interest / $r Joachim Allgaier -- $t The inescapability of knowing and inability to not know in the digital society / $r Richard Watermeyer -- $t The food we eat : the right to be informed and the duty to inform / $r Michiel Korthals. 520 $a "The privacy concerns discussed in the 1990s in relation to the New Genetics failed to anticipate the relevant issues for individuals, families, geneticists and society. Consumers, for example, can now buy their personal genetic information and share it online. The challenges facing genetic privacy have evolved as new biotechnologies have developed, and personal privacy is increasingly challenged by the irrepressible flow of electronic data between the personal and public spheres and by surveillance for terrorism and security risks. This book considers the right to know and the right not to know about your own and others' genomes. It discusses new privacy concerns and developments in ethical thinking, with the greater emphasis on solidarity and equity. The multidisciplinary approach covers current topics such as biobanks and forensic databases, DIY testing, group rights and accountability, the food we eat and the role of the press and the new digital media"-- $c Provided by publisher. 650 0 $a Human chromosome abnormalities $x Moral and ethical aspects. $x Moral and ethical aspects. 650 0 $a Genetic disorders $x Moral and ethical aspects. $x Moral and ethical aspects. 650 0 $a Genetic screening $x Law and legislation. 650 0 $a Privacy, Right of. 700 1 $a Chadwick, Ruth F., $e editor. 700 1 $a Levitt, Mairi, $e editor. 700 1 $a Shickle, Darren, $e editor. 830 0 $a Cambridge bioethics and law. 941 $a 2 952 $l OVUX522 $d 20191210030325.0 952 $l USUX851 $d 20171003035131.0 956 $a http://locator.silo.lib.ia.us/search.cgi?index_0=id&term_0=D9CF2FB06B5511E69AFE1DDBDAD10320 994 $a C0 $b IWAInitiate Another SILO Locator Search