I. Biosensing and representation -- 1. Do biosensors biomedicalize?: sites of negotiation in DNA-based biosensing data practices / Mette Kragh-Furbo, Adrian Mackenzie, Maggie Mort, and Celia Roberts -- 2. Data in the age of digital reproduction: reading the quantified self through Walter Benjamin / Jamie Sherman -- 3. Biosensing: tracking persons / Sophie Day and Celia Lury -- 4. The quantified self: reverse engineering / Gary Wolf -- II. Institutional arrangements -- 5. Biosensing in context: health privacy in a connected world / Helen Nissenbaum and Heather Patterson -- 6. Disruption and the political economy of biosensor data / Brittany Fiore-Gartland and Gina Neff -- 7. Deep data: notes on the n of 1 / Dana Greenfield -- 8. Consumer health innovation opportunities and privacy challenges: a view from the trenches / Rajiv Mehta -- III. Seeing like a builder -- 9. Open mHealth and the problem of data interoperability / Deborah Estrin and Anna de Paula Hanika, with Dawn Nafus -- 10. Field notes in contamination studies / Marc Böhlen -- 11. Data, (bio)sensing and (other-)worldly stories from the cycle routes of London / Alex Taylor -- 12. The data citizen, the quantified self, and personal genomics / Judith Gregory and Geoffrey C. Bowker.
Summary:
Today anyone can purchase technology that can track, quantify, and measure the body and its environment. Wearable or portable sensors detect heart rates, glucose levels, steps taken, water quality, genomes, and microbiomes, and turn them into electronic data. Is this phenomenon empowering, or a new form of social control? Who volunteers to enumerate bodily experiences, and who is forced to do so? Who interprets the resulting data? How does all this affect the relationship between medical practice and self care, between scientific and lay knowledge? Quantified examines these and other issues that arise when biosensing technologies become part of everyday life. The book offers a range of perspectives, with views from the social sciences, cultural studies, journalism, industry, and the nonprofit world. The contributors consider data, personhood, and the urge to self-quantify; legal, commercial, and medical issues, including privacy, the outsourcing of medical advice, and self-tracking as a "paraclinical" practice; and technical concerns, including interoperability, sociotechnical calibration, alternative views of data, and new space for design.
This resource is supported by the Institute of Museum and Library Services under the provisions of the Library Services and Technology Act as administered by State Library of Iowa.