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Title:

Comparative issues in the governance of research biobanks : property, privacy, intellectual property, and the role of technology / Giovanni Pascuzzi, Umberto Izzo, Matteo Macilotti, editors.

Publisher:

Springer,

Copyright Date:

2013

Description:

viii, 339 pages : illustrations ; 25 cm

Subject:

Biobanks--Law and legislation.
Tissue banks--Law and legislation.
Biology--Law and legislation.--Law and legislation.
Biobanks--Government policy--Cross-cultural studies.
Tissue banks--Government policy--Cross-cultural studies.
Biological Specimen Banks--legislation & jurisprudence.
Ownership--legislation & jurisprudence.
Intellectual Property.
Confidentiality--legislation & jurisprudence.
Health Policy.
Cross-Cultural Comparison.
Biobank.
Gesundheitsrecht.
Medizin.
Recht.
Patentrecht.
Datenspeicherung.
Staatstätigkeit.
Bioinformatik.

Other Authors:

Pascuzzi, Giovanni. http://id.loc.gov/authorities/names/n91068480
Izzo, Umberto. http://id.loc.gov/authorities/names/n2006043746
Macilotti, Matteo. http://id.loc.gov/authorities/names/no2013044988

Notes:

Includes bibliographical references and index.

Contents:

Biobanks: The Perspective of Biobanker's -- Governance of Biobanks for Cancer Research: Proposal for a Material Transfer Agreement / Barbara Parodi, Paola Visconti, Tiziana Ruzzon, Mauro Truini. Regulating Biobanks: Another Triple Bottom Line / Roger Brownsword -- Health Insurance, Employment, and the Human Genome: Genetic Discrimination and Biobanks in the United States / Eric A. Feldman, Chelsea Darnell -- Ownership of Biomedical Information in Biobanks / Naomi Hawkins, Nadja Kanellopoulou, Jane Kaye, Karen Melham, Paula Boddington -- Human Tissues in the "Public Space": Beyond the Property/Privacy Dichotomy / Mariachiara Tallacchini -- Should Privacy Be Abolished in Genetics and Biobanking? / Amedeo Santosuosso -- Biobanks and Electronic Health Records: Open Issues / Paolo Guarda -- Informed Consent and Research Biobanks: A Challenge in Three Dimensions / Matteo Macilotti -- Intellectual Property and Biobanks -- The Challenges of Achieving Open Source Sharing of Biobank Data / Donna M. Gitter -- Beyond Open Source: Patents, Biobanks and Sharing / E. Richard Gold, Dianne Nicol -- Opening Research Biobanks: An Overview / Roberto Caso, Rossana Ducato -- The Roles of Material Transfer Agreements in Genetics Databases and Bio-Banks / Thomas Margoni -- Quasi-Patents and Semi-Patents in Biobanking / Gideon Parchomovsky, Michael Mattioli -- Accessing Accessions: Biobanks and Benefit-Sharing / Mark Perry -- Conveying Information, Generating Trust: The Role of Certifications in Biobanking / Matteo Ferrari -- Biobanks: The Perspective of Biobanker's -- Scientific and Managerial Premises and Unresolved Issues in Tumour Biobanking Activities / Mattia Barbareschi, Silvia Fasanella, Chiara Cantaloni, Silvia Giuliani -- The Italian Prototype Networks of Research Biobanks / Giuliano D'Agnolo, Elena Bravo -- Governance of Biobanks for Cancer Research: Proposal for a Material Transfer Agreement / Barbara Parodi, Paola Visconti, Tiziana Ruzzon, Mauro Truini.

ISBN:

3642331165
9783642331169
3642331157
9783642331152

OCLC:

(OCoLC)806019911

LCCN:

2012955753

Locations:

OVUX522 -- University of Iowa Libraries (Iowa City)