"This report is the result of a collaboration between interACT and Human Rights Watch"--Acknowledgments. Includes bibliographical references.
Contents:
Acknowledgments. Methodology -- Glossary: A note on terminology -- VIII. Background: Non-disclosure of Intersex Status -- Changing Medical Protocols -- The Persistence of Medically Unnecessary Surgery -- II. Autonomy and Integrity: A Harmful Paradigm -- Irreversible Medical Interventions -- Repetitive, Abusive, and Unnecessary Genital Exams -- Violations of Privacy and Messages of Shame -- III. Pressure from Doctors: Case Studies -- Operating Before Diagnosis: The Story of Judy, Carl, and Jackey -- Wendy's Struggle Against Surgery Pressures -- The Impact of Openness: From "It" to an Option for Reversible Care -- IV. Limited Data on Outcomes -- V. Lack of Informed Consent -- VI. Justifications for Surgery: Advice Without Data -- When Parents Push for Surgery -- VII. The Positive Role of Peer Support Groups -- VIII. Legal Standards Regarding Intersex Children: International Human Rights Law: Torture and Other Cruel, Inhuman, and Degrading Treatment -- Children's Rights -- Women's Rights -- The Right to Bodily Autonomy -- The Right to Health -- US Domestic Law: Sterilization -- Female Genital Mutilation -- Informed Consent -- Recommendations: To the United States Congress -- To State Insurance Boards and Departments of Financial Services -- To Private Insurance Companies -- To State Legislatures -- To the US Department of Health and Human Services -- To the National Institutes of Health -- To the American Medical Association -- To the American Psychological Association -- To the Attorneys General of all 50 states -- To the American Academy of Pediatrics -- To the World Health Organization -- To UNICEF -- To the Society for Pediatric Urology, the Pediatric Endocrine Society, and the North American Society for Pediatric and Adolescent Gynecology -- To the World Professional Association for Transgender Health -- Acknowledgments.
Summary:
"This report examines the physical and psychological damage caused by medically unnecessary surgery on intersex people, who are born with chromosomes, gonads, sex organs, or genitalia that differ from those seen as socially typical for boys and girls. The report examines the controversy over the operations inside the medical community, and the pressure on parents to opt for surgery"--Publisher's description.
This resource is supported by the Institute of Museum and Library Services under the provisions of the Library Services and Technology Act as administered by State Library of Iowa.