Introduction : patients as policy actors -- Solitary advocates : the severely brain injured and their surrogates -- Physician-patient communication in the care of vulnerable populations : the patient's voice in interpersonal policy -- Is it time to push yet? The challenges to advocacy in U.S. childbirth -- A pound of flesh : patient legal action for human research protections in the biotech age -- From outsiders to insiders : the consumer-survivor movement and its impact on U.S. mental health policy -- "Don't scream alone" : the health care activism of poor Americans in the 1970s -- The canary in Gemeinschaft : using the public voice of patients to enhance health system performance -- Patient appeals as policy disputes : individual and collective action in managed care -- The power of us : a new approach to advocacy for rare cancers -- Patients and the rise of the nurse-practitioner profession -- A house on fire : newborn screening, parents' advocacy, and the discourse of urgency -- Measuring success : scientific, institutional, and cultural effects of patient advocacy -- Epilogue : principles for engaging patients in U.S. health care and policy.
This resource is supported by the Institute of Museum and Library Services under the provisions of the Library Services and Technology Act as administered by State Library of Iowa.