Includes bibliographical references (pages 155-180) and index.
Contents:
Genesis : What is Bioinformation? -- Provenance : Where Does Bioinformation Come From? -- Property : Who Owns Bioinformation? -- Markets : Who Consumes Bioinformation? -- The Big Data Revolution -- Bioinformatic Futures : The Datafication of Everything?
Summary:
"From DNA sequences stored on computer databases to archived forensic samples and biomedical records, bioinformation comes in many forms. Its unique provenance--the fact that it is 'mined' from the very fabric of the human body--makes it a mercurial resource; one that no one seemingly owns, but in which many have deeply vested interests. Who has the right to exploit and benefit from bioinformation? The individual or community from whom it was derived? The scientists and technicians who make its extraction both possible and meaningful or the commercial and political interests which fund this work? Who is excluded or even at risk from its commercialisation? And what threats and opportunities might the generation of Big Bioinformational Data raise? In this groundbreaking book, authors Bronwyn Parry and Beth Greenhough explore the complex economic, social and political questions arising from the creation and use of bioinformation. Drawing on a range of highly topical cases--including the commercialization of human sequence data, the forensic use of retained bioinformation, biobanking and genealogical research--they show how demand for this resource has grown significantly driving a burgeoning but often highly controversial global economy in bioinformation. But, they argue, change is afoot as new models emerge that challenge the ethos of privatisation by creating instead a dynamic open source 'bioinformational commons' available for all future generations"-- Provided by publisher.
This resource is supported by the Institute of Museum and Library Services under the provisions of the Library Services and Technology Act as administered by State Library of Iowa.