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Title:

Challenges and opportunities in using residual newborn screening samples for translational research : workshop summary / Steve Olson and Adam C. Berger, rapporteurs ; Roundtable on Translating Genomic-Based Research for Health, Board on Health Sciences Policy, Institute of Medicine of the National Academies.

Publisher:

National Academies Press,

Copyright Date:

c2010

Description:

xv, 67 p. : ill. ; 23 cm.

Subject:

Genetic Diseases, Inborn--diagnosis--United States.
Neonatal Screening--United States.
Translational Research--ethics--United States.
Neonatology--Moral and ethical aspects.--Moral and ethical aspects.
Newborn infants--Diagnosis.--Diagnosis.

Other Authors:

Olson, Steve, 1956-
Berger, Adam C.
Institute of Medicine (U.S.). Roundtable on Translating Genomic-Based Research for Health.

Notes:

Includes bibliographical references.

Contents:

Newborn screening as a public health program -- Uses of residual newborn screening samples in research -- Concerns about the use of residual newborn screening samples -- Review and consent in the use of residual newborn screening samples -- Parental and public education -- Workshop overview and wrap-up.

Summary:

"Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research."

ISBN:

0309159547
9780309159548

OCLC:

(OCoLC)668941942

Locations:

USUX851 -- Iowa State University - Parks Library (Ames)