Introduction. New Perspectives on Caregiving -- Reformulating Stress and Burden -- Challenging the Medical Model of Dementia -- Looking to the Past: What the Nineteenth Century Can Tell Us -- The Elder Care Crisis: The Tyranny of the Family Responsibility Ethic -- "That Was No Respite for Me!": Using Services at Home and in the Community -- "They Can't Possibly Love Him as I Do": The Anguish of Institutional Placement -- "Oh No, Don't Feel Guilty": Advising Others and Fighting Back -- "No One Is Coming Out of This Unscathed": The Nursing Home Tragedy in the Pandemic -- "This Being Homebound Is So Hard": Confronting Hospital Regulations, Sheltering in Place, and Interacting with Workers -- Conclusion: How the Pandemic Exposed and Exacerbated the Crisis in Care.
Summary:
"Drawing partly from an online support group for dementia caregivers, this book demonstrates that this country faces an elder care crisis. Our elder care system rests on the exploitation of workers, mostly women and people of color, who are paid too little to make ends meet and imposes unsustainable burdens on family members"-- Provided by publisher.
This resource is supported by the Institute of Museum and Library Services under the provisions of the Library Services and Technology Act as administered by State Library of Iowa.