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03078aam a2200337 i 4500 001 9892948E6CA011E9A39CB90697128E48 003 SILO 005 20190502010142 008 180614s2019 mau b 001 0 eng 010 $a 2018027592 020 $a 0262039567 020 $a 9780262039567 035 $a (OCoLC)1041562266 040 $a DLC $b eng $e rda $c DLC $d OCLCO $d BDX $d YDX $d OCLCF $d YDX $d CIJ $d L2U $d YUS $d SILO 042 $a pcc 050 00 $a TP248.2 E83 2019 100 1 $a Estreich, George, $e author. 245 10 $a Fables and futures : $b biotechnology, disability, and the stories we tell ourselves / $c George Estreich. 264 1 $a Cambridge, Massachusetts : $b The MIT Press, $c [2019] 300 $a xviii, 219 pages ; $c 24 cm 504 $a Includes bibliographical references and index. 505 0 $a Virtual children -- The germline -- At the fair -- Human interests -- The fine print -- New Orleans -- Reading Synthia -- Dismissive narratives -- Model worlds -- Finding a place. 520 $a From next-generation prenatal tests, to virtual children, to the genome-editing tool CRISPR-Cas9, new biotechnologies grant us unprecedented power to predict and shape future people. That power implies a question about belonging: which people, which variations, will we welcome? How will we square new biotech advances with the real but fragile gains for people with disabilities--especially when their voices are all but absent from the conversation? 0This book explores that conversation, the troubled territory where biotechnology and disability meet. In it, George Estreich--an award-winning poet and memoirist, and the father of a young woman with Down syndrome--delves into popular representations of cutting-edge biotech: websites advertising next-generation prenatal tests, feature articles on "three-parent IVF," a scientist's memoir of constructing a semisynthetic cell, and more. As Estreich shows, each new application of biotechnology is accompanied by a persuasive story, one that minimizes downsides and promises enormous benefits. In this story, people with disabilities are both invisible and essential: a key promise of new technologies is that disability will be repaired or prevented. 0In chapters that blend personal narrative and scholarship, Estreich restores disability to our narratives of technology. He also considers broader themes: the place of people with disabilities in a world built for the able; the echoes of eugenic history in the genomic present; and the equation of intellect and human value. Examining the stories we tell ourselves, the fables already creating our futures, Estreich argues that, given biotech that can select and shape who we are, we need to imagine, as broadly as possible, what it means to belong. 650 0 $a Biotechnology. 650 0 $a Human genetics. 650 0 $a Parents of children with disabilities. 941 $a 2 952 $l UQAX771 $d 20200319010256.0 952 $l USUX851 $d 20190605015856.0 956 $a http://locator.silo.lib.ia.us/search.cgi?index_0=id&term_0=9892948E6CA011E9A39CB90697128E48 994 $a C0 $b IWAInitiate Another SILO Locator Search