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02470aam a22003494a 4500 001 F415758C846411E18E1E30966AFF544E 003 SILO 005 20120412010049 008 100930s2011 njua b s001 0 eng 010 $a 2010041970 020 $a 0813550513 (pbk. : alk. paper) 020 $a 9780813550510 (pbk. : alk. paper) 020 $a 0813550505 (hardcover : alk. paper) 020 $a 9780813550503 (hardcover : alk. paper) 040 $a DNLM/DLC $b eng $c DLC $d SILO $d NLM $d YDXCP $d CDX $d UKMGB $d MIX $d IG# $d BDX $d VP@ $d SDB $d E7B $d SILO 042 $a pcc 043 $a n-us--- 050 00 $a R727.45 $b .P455 2011 245 0 $a Patients as policy actors / $c edited by Beatrix Hoffman ... [et al.]. 260 $a New Brunswick, N.J. : $b Rutgers University Press, $c c2011. 300 $a viii, 309 p. : $b ill. ; $c 23 cm. 490 1 $a Critical issues in health and medicine 504 $a Includes bibliographical references and index. 505 0 $a Introduction : patients as policy actors -- Solitary advocates : the severely brain injured and their surrogates -- Physician-patient communication in the care of vulnerable populations : the patient's voice in interpersonal policy -- Is it time to push yet? The challenges to advocacy in U.S. childbirth -- A pound of flesh : patient legal action for human research protections in the biotech age -- From outsiders to insiders : the consumer-survivor movement and its impact on U.S. mental health policy -- "Don't scream alone" : the health care activism of poor Americans in the 1970s -- The canary in Gemeinschaft : using the public voice of patients to enhance health system performance -- Patient appeals as policy disputes : individual and collective action in managed care -- The power of us : a new approach to advocacy for rare cancers -- Patients and the rise of the nurse-practitioner profession -- A house on fire : newborn screening, parents' advocacy, and the discourse of urgency -- Measuring success : scientific, institutional, and cultural effects of patient advocacy -- Epilogue : principles for engaging patients in U.S. health care and policy. 650 0 $a Patient advocacy $z United States. 650 0 $a Medical policy $z United States. 700 1 $a Hoffman, Beatrix Rebecca. 830 0 $a Critical issues in health and medicine. 941 $a 1 952 $l UQAX771 $d 20120412012011.0 956 $a http://locator.silo.lib.ia.us/search.cgi?index_0=id&term_0=F415758C846411E18E1E30966AFF544E 994 $a C0 $b JIDInitiate Another SILO Locator Search