54 records matched your query       

03150cam a22004334a 4500
001 D44FC5766BFE11DEA13FF332A8D7520A
003 SILO
005 20100201083435
008 080125s2008    enk      b    001 0 eng  
010    $a 2008003427
020    $a 0754672557 (hardback : alk. paper)
020    $a 9780754672555 (hardback : alk. paper)
035    $a (OCoLC)223104423
040    $a DNLM/DLC $c DLC $d SILO $d UKM $d BWKUK $d YDXCP $d BWX $d CDX $d MUQ $d IWO $d SILO
042    $a pcc
050 00 $a QH438.7 $b .E836 2008
082 00 $a 174.2 $2 22
245 0  $a Ethical issues in governing biobanks : $b global perspectives / $c edited by Bernice Elger ... [et al.].
260    $a Burlington, VT : $b Ashgate Pub. Ltd., $c c2008.
300    $a vi, 257 p. ; $c 24 cm.
504    $a Includes bibliographical references and index.
505 0  $a Biobanks, genomics, and research: a nightmare for public policy makers? / Alex Mauron -- Biobanks in the literature / Bartha Maria Knoppers and Maøn H. Abdul-Rahman -- Guidelines on biobanks: emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno -- Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.] -- Consent and use of samples / Bernice Elger -- Consent to research involving human biological samples obtained during medical care / Bernice Elger -- Collective consent / Agomoni Ganguli-Mitra -- Withdrawal of consent and destruction of samples / Bernice Elger -- Anonymization and coding / Bernice Elger -- Informing participants about research results / Andrea Boggio -- Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries / Andrea Boggio -- Public domain sharing, patents, and fees resulting from research involving genetic databases / Andrea Boggio -- Benefit-sharing and remuneration / Agomoni Ganguli-Mitra -- Transfer of samples and sharing of results : requirements imposed on researchers / Andrea Boggio -- Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron -- Biobanks and genomic research : what shape the future? / Alex Capron.
650  0 $a Human genetics $x Moral and ethical aspects. $x Moral and ethical aspects.
650  0 $a Human genetics $x Law and legislation. $x Law and legislation.
650 12 $a Genome, Human.
650 22 $a Confidentiality.
650 22 $a Databases, Genetic $x ethics.
650 22 $a Databases, Genetic $x legislation & jurisprudence.
650 22 $a Genetic Research $x ethics.
650 22 $a Genetics, Population $x ethics.
650  6 $a Génétique humaine $x Aspect moral. $x Aspect moral.
650  6 $a Génétique humaine $x Droit. $x Droit.
700 1  $a Elger, Bernice.
941    $a 3
952    $l OVUX522 $d 20171220025642.0
952    $l USUX851 $d 20160824081827.0
952    $l N5UX522 $d 20090708133753.0
956    $a http://locator.silo.lib.ia.us/search.cgi?index_0=id&term_0=D44FC5766BFE11DEA13FF332A8D7520A
994    $a 02 $b IWO