39 records matched your query       

03424aam a2200325Ii 4500
001 2EE9311A0B6411EAA467CE0D97128E48
003 SILO
005 20191120010135
008 180402s2018    sz a     b    000 0 eng d
020    $a 3319905627
020    $a 9783319905624
035    $a (OCoLC)1029889854
035    $a (OCoLC)1082483651
040    $a YDX $b eng $e rda $c YDX $d OCLCO $d GUL $d BDX $d OCLCF $d YDX $d OCLCO $d IaU-L $d SILO
050  4 $a RD127 $b .P83 2018
060  4 $a QS 523
082 04 $a 362.1783 $2 23
245 00 $a Public regulation of tumor banks : $b establishment, heritage status, development and sharing of human biological samples / $c Xavier Bioy, editor.
264  1 $a Cham, Switzerland : $b Springer, $c [2018]
300    $a xiv, 221 pages : $b color illustrations ; $c 25 cm
504    $a Includes bibliographical references.
520    $a The multidisciplinary book assesses the legal and economic uncertainties surrounding the collection, storage, provision and economic development of biological samples (tumors, tissues, cells) and associated personal data related to oncology. Public, partly public and private sector actors in the field of cancer care and research hold collections supported by significant public and social funding. Under certain conditions, particularly in the context of networking (sometimes promoted by public authorities), these collections can also represent major economic assets and scientific resources. However, this involves a number of issues and institutional constraints: legal: the will of the source person; non-pecuniary damage; freedom to establish collections; competence in deciding on their use; legal frameworks for their distribution; desire for return on investment for public institutions, notably in terms of industrial and intellectual property. Economic: cost of establishing and running biological resource centres; destroying resources; emerging markets; profit sharing. public health policy choices: prioritisation of therapeutic measures over research (fundamental or clinical trials); conservation of resources; promotion of scientific (and not commercial) value of collections. The establishment, heritage recognition ("patrimonialisation"), development and sharing of these resources thus merit our calling into question present practices and their evolution, as well as the leverage available to public authorities (incentives, legislation, regulation) in a context where norms emerge from professional practice to become widely used in collaborative networks. Filling a gap in the current literature on law and economics, which pays little heed to these specific considerations, this book explores these considerations to bring to light the economic implications of ethical choices and governance issues in the health sector (structural organisation of local, national and European actors in oncology). It is intended for researchers in fields such as law, economics and biomedical sciences, as well as for public policymakers.
650  0 $a Tissue banks.
650  7 $a Tissue banks. $2 fast $0 (OCoLC)fst01151477
650  2 $a Tissue Banks.
700 1  $a Bioy, Xavier, $e editor.
776 08 $i Electronic version: $t Public regulation of tumor banks. $d Cham, Switzerland : Springer, [2018] $z 9783319905631 $w (OCoLC)1043830727
941    $a 1
952    $l OVUX522 $d 20200318013230.0
956    $a http://locator.silo.lib.ia.us/search.cgi?index_0=id&term_0=2EE9311A0B6411EAA467CE0D97128E48