Compact discs. Read by Lisa Reneé Pitts and Sara Sheckells.
Contents:
All you need is one person: the birth of a patient community (and what to expect from this book) / Fiona Lowenstein -- It wasn't the beans and rice: fighting biased health care systems with community care / Karla Monterroso -- Standing tall (and sitting right back down): living with Dysautonomia / Heather Hogan -- COVID can't be outpaced: learning radical rest and pacing / Pato Hebert -- With disability, comes rights: navigating the financial impacts of COVID-19 / Letícia Soares, Alison Sbrana, and Karyn Bishof -- The long haul of undeniable need: finding a caregiver / Chimére L. Smith -- The obstacle course: obtaining a diagnosis / Rachel Robles, Dona Kim Murphey, MD, PhD, and David Putrino, PhD -- Down in the well, we will mourn and sing: surviving mental illness / Morgan Stephens -- Am I making any sense?: navigating cognitive dysfunction / Terri L. Wilder, MSW, and Yochai Re'em, MD -- Not the only one: talking about menstrual issues / Monique Jackson -- Gut instincts: finding peer-to-peer support / Padma Priya -- Knowledge Is power: navigating long COVID research / Lisa McCorkell -- Such a powerful love: disabled and chronically ill people and our long fight for justice / JD Davids and Naina Khanna -- Afterword / Akiko Iwasaki, PhD.
Summary:
The first patient-to-patient guide for people living with Long COVID, with expert advice and an afterword by a leading research scientist.
This resource is supported by the Institute of Museum and Library Services under the provisions of the Library Services and Technology Act as administered by State Library of Iowa.