Genetic discrimination : transatlantic perspectives on the case for a European-level legal response / edited by Gerard Quinn, Aisling de Paor, Peter Blanck.
Section 3. Th United States legislative experience. Peter Blanck and Aisling de Paor -- Section 1. Advances in genetic science and technology. The Genetic Informatin Nondiscrimination Act (GINA) 2008 / Aisling de Paor and Noel Lowndes -- Section 2. Ethical and legal dilemmas arising from emerging technologies. Diversity ethics and the impact of genetic technologies / Javier Romaǹ‹ach Cabrero -- Genes, identity and clinical ethics under conditions of uncertainty / Rebecca Wolf, Michael Joseph Young, Michael Ashley Stein and Harold J. Bursztajn -- The use of genetic information outside of the therapeutic health relationship : an international perspective / J. Rosel Kim, Shahad Salman and Yann Joly -- Section 3. Th United States legislative experience. US legislative and policy response : some historical context to GINA / Peter Blanck and Aisling de Paor -- The Genetic Informatin Nondiscrimination Act (GINA) 2008 / Janet E. Lord -- Accommodating genes : disability, discrimination and international human rights law / Robert S. Olick -- Section 5. Considering the way forward for the EU. Genetic discrimination in insurance : lessons from Test Achats / James Davey -- Employment practices in a new genomic era : acknowledging competing rights and striking a balance / Aisling de Paor -- Medical (genetic) examinations for non-health purposes : the relevance of European legal standard setting / Henriette Roscam Abbing -- National legal and policy responses to genetic discrimination in Europe : the difficulties of regulation / Ine Van Hoyweghen -- Genetic discrimination and the draft European Union General Data Protection Regulation / Mark Taylor -- Accommodating genes : disability, discrimination and international human rights law / Janet E. Lord -- Section 5. Considering the way forward for the EU. Genetic discrimination : is it time for the EU to take on a new challenge? / Aisling de Paor, Gerard Quinn and Peter Blanck. Conclusion / Aisling de Paor, Gerard Quinn and Peter Blanck.
Summary:
"The science and technology of genetic testing is rapidly advancing with the consequences that genetic testing may well offer the prospect of being able to detect the onset of future disabilities. Some recent research also indicates that certain behavioural profiles may have a strong genetic basis, such as the determination to succeed and win or the propensity for risk-taking, which may be of interest to third parties. However, as this technology becomes more prevalent there is a danger that the genetic information may be misused by entities such as employers, insurance companies, educational facilities, and finance companies and that people with particular genetic profiles may be discriminated against.This book explores the different types and the potential uses of genetic testing. The book highlights the ethical and legal dilemmas and the challenges arising as a result of emerging and rapidly advancing genetic science. Chapters in the book assess the importance and impact of the US Genetic Information Non-Discrimination Act (GINA) in the employment and health insurance contexts asking whether it is proving to be an effective tool in addressing the issue of genetic discrimination and alleviating individuals' fears of discrimination. The book then goes on to make the case for regulation at the European Union level in order to protect the privacy of genetic information and to prevent the discriminatory use of genetic information in Europe. It considers what can be learnt from the experience of the US in addressing ethical and legal issues as well as the impact that the UN Convention on the Rights of Persons with Disabilities is having on this debate within the EU"-- Provided by publisher. "As genetic technologies advance, genetic testing may well offer the prospect of detecting the onset of future disabilities. Some research also forwards that certain behavioural profiles may have a strong genetic basis, such as the determination to succeed, or the propensity for risk-taking. As this technology becomes more prevalent there is a danger that genetic information may be misused by third parties, and that particular genetic profiles may be discriminated against by employers, insurance companies, and educational facilities. This book explores the different forms and potential uses of genetic testing. Drawing together leading experts in disability law, bioethics and genetic discrimination, it highlights the ethical and legal challenges arising as a result of emerging and rapidly advancing genetic science. Chapters in the book ask whether the US Genetic Information Non-Discrimination Act (GINA) is proving to be an effective tool in addressing the issue of genetic discrimination and is alleviating fears of discrimination. The book also reviews what may be learnt from GINA within employment and health insurance contexts, and asks how the UN Convention on the Rights of Persons with Disabilities (CRPD) may impact similar debates within the European Union. This book will be of great interest to scholars and students of discrimination law, bioethics, and disability law, and will be of considerable use to medical practitioners and policy makers in this area"-- Provided by publisher.
This resource is supported by the Institute of Museum and Library Services under the provisions of the Library Services and Technology Act as administered by State Library of Iowa.